The Year of Living Dangerously πŸ‘€

In 2015 we plan to go full steam ahead to take a few allergens of my son’s long list. If only it was as easy as erasing the top 5 or so! Under medical advice we have started
immunotherapy (more on that later) and we hope to do a baked egg challenge this year.

As the junior Immunology Dr at the local children’s hospital said (after discussion with a Senior Research Immunologist) it’s time we investigated some of my son’s food allergens to gauge the response. My son has never had egg but his blood test shows an elevated sensitization to it, and he has a reaction hive with skin prick testing.

Having said that the experience of the Immunologists have found that some children with blood sensitivity to egg, can go either way with a baked egg challenge, into yay add it to your diet, or disaster lets go for the Epi pen.

So the baked egg (muffin) challenge will be a ‘high risk’ food challenge as a booked patient at the Children’s Hospital. My son is 7.5 years of age, we have to start pushing the boundaries (under medical advice and supervision) to improve his quality of life.

I haven’t used egg in our house for 7 years – so that in itself will be a unique and hopeful experience.

Immunotherapy
Both pollen, grass and dust are a major problem for my son. These allergens set up a pathway to trigger asthma and allergic conjunctivitis. The desensitization involves two injections for twelve weeks (with a gradual increase of the allergen) and then a monthly maintenance dose for 3 years.

The first set of injections took place yesterday and it was traumatic. New strategy for next visit is EMLA, skin numbing cream. We also have a reward chart going, after 10 visits to the Dr (20 injections) my son gets a Lego set.

It isn’t much fun but my husband I are looking at the big picture. Less asthma triggers and no more itchy, conjunctivitis eyes.

Desensitization does carry a risk, as the dose increases there can be issues such as asthma or in some cases anaphylaxis. That’s why after the injections we have to wait 30 minutes in the waiting room before we can go home. It is a big investment on many fronts.

So this is the year of living dangerously for us. All good wishes gratefully accepted.

How’s your year shaping up?

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2 comments on “The Year of Living Dangerously πŸ‘€

  1. mellyhind76
    September 17, 2015 at 12:25 pm #

    Hey, Its so lovely to discover you blog. I’ve just begun my blog story about my 3 kids all anaphylactic to various foods. It’s challenging uh? Love that you are real but encouraging about your experiences and look forward to reading more of your posts. πŸ™‚

    • intrepidallergymum
      December 23, 2015 at 7:22 pm #

      Hi Melly
      I will look up your blog, soon! Currently in Christmas countdown! As you must be… Nice to share the allergy journey with you. I have found writing this blog cathartic, and I hope you find support, humour and some great recipes in your travels around the internet.
      I have had a long break from the blog, but will be posting soon.
      Best wishes for a safe and happy 2016 to you and your family.
      Charmaine

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